Taking part in our research

Please get in touch if you would like to take part in the study, and we will send you more information. If you do not have access to email, phone numbers are at the bottom of this page.

If you live in Wales, England or Scotland, please get in touch using the links below: 

We are inviting dementia carers living in Britain to take part. The iSupport for Dementia Carers study is the first study in the UK to investigate if there are benefits from online support for dementia carers.

Help us to investigate whether using iSupport, an online support and education programme website, is better at reducing stress, and improving resilience and knowledge of dementia, compared to reading information leaflets.

Who can take part?

Dementia carers aged 18+ in England, Wales and Scotland, and 30 young carers (aged 11-17).

What does the study involve?

The study will be split into 4 stages:

1. Examine the effectiveness of iSupport in reducing distress and/or depression. Out of 350 carers, half of the carers will use iSupport and half will receive information leaflets. All participants will answer questionnaires about stress, mental health, resilience and knowledge of dementia. Participants will do this three times over a 6-month period. By comparing the two groups, the researchers will be able to show whether using iSupport is better than reading information.

2. Understand which aspects of iSupport carers like the most, and what might put them off using it. The researchers will interview a smaller group of 50 carers and have a longer discussion about their thoughts, feelings and the impact iSupport has had on them.

3. Examine the potential costs and benefits of iSupport. This will involve carers answering questions about health and social care service use.

4. Adapt iSupport for young carers (age 11–17). There are currently no evidence-based support interventions for young carers of people with dementia. The researchers will work with groups of young carers and adapt iSupport for their use, identify what outcomes are most important to them, and assess this new version of iSupport with 30 young carers.

Not all carers will be involved in all stages of the study, but every contribution will be invaluable in helping us to better understand and improve online learning and support for dementia carers.

In the first stage of the study, we will only be working with a limited number of carers. Please do not worry if you are not involved at first, as we will be in touch to talk to you about ways you can get involved at a later date. The first stage of the study will begin in August 2021.

Please get in touch if you would like to take part in the study, and we will send you more information.

If you live in Wales, England or Scotland, please get in touch using the links below: 

 If you do not have access to email you can call our researchers. Please be aware we may not be able to answer your phone call straight away, but we will phone you back on the number you called us from.

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